Down the Rabbit Hole…

For as long as I can recall, I have known that I was different than the people around me. I knew that my body did things that other people’s bodies didn’t. Things would come up in conversation and I would be like “Oh, you can’t do that?” I remember being very young when this first happened to me. It has happened more times then I can now recount. But some of those things were realizing that others couldn’t put their feet behind their head, other people didn’t fall several times a week, constipation wasn’t normal, neither was vomiting and other people felt hungry.

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Coping with Chronic Illness

I have recently been more open about my diagnosis of EDS and have been talking about it with more people. Not that I was ever trying to hide it, but I personally have been more educated on it and am learning more all the time. This makes it much easier to have those conversations. One question that I have been getting frequently is some variation on “How do you cope with the losses that your chronic illness brings?” I find this to be a surprising and strange question. I’ve also struggled to answer it. But here goes!

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