Update 012320

I had a podiatrist appointment today. The podiatrist is amazing. I am so grateful for his compassion and how completely through he is. I wish more doctors were like this. Everything about his approach is completely validating which is so refreshing. As I look towards becoming an FNP, this man is my role model. This is the kind of provider that I want to be. This is the kind of patient experience I want every patient in my care to have.

I have had the orthodics since Monday and my pain has already improved. I can’t express how happy I am that sticking something in my shoe is making such a HUGE difference! I was warned that it would make my pain worse in the beginning and would take a while to get used to them. But my pain has been so much better since wearing them. I am having aches that I know are being caused by them, but this tired muscle ache is nothing compared to the awful foot pain I have been experiencing.

He has also referred me to see a rheumatologist because he feels that many of my symptoms suggestion a systemic issue. Unfortunately, autoimmune diseases are very common in EDS so it’s quite possible I have something like that going on. I definitely have arthritis at this stage of the game and they would be the ones to differentiate between osteoarthritis and rheumatoid arthritis.

Not that I’m looking forward to having another doctor involved with my care. I think that needing so many doctors is one of the crappiest things about EDS.

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