This is startling. Only 20% of EDS-H patient’s had normal testing for the autonomic nervous system. 80% with autonomic dysfunction (postural orthostatic tachycardia syndrome or orthostatic intolerance). That is huge.
When I think about it, this makes sense to me, but I really didn’t expect the numbers to be this high. Given that we have lax blood vessels that easily allow blood to pool in places and ways that it isn’t supposed to, it makes sense that it would be difficult for our bodies to regulate our blood pressure and pulses in different positions.