So, you just got your EDS diagnosis. Now what?
My advice is to first take to time to process what this diagnosis means for you. There is inevitably a bunch of feelings all tangled up with this, give them space. Let yourself grieve, it is a normal part of getting a chronic illness diagnosis.
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Over brushing your teeth can cause a lot of damage. This is part of the problem I have with my teeth. Before I knew I had OCD, I would carry my tooth brush with me and brush my teeth 10 or 12 times a day. It was a difficult habit to change. When people think about OCD, they don’t tend to think of brushing teeth. But I was obsessed with having smooth teeth. I would brush whenever I lost that smooth feel on my teeth. Because of that, I have sensitive teeth, receded gums and thin enamel. All too often, the compulsive behaviors are harmful.
The last few days have been difficult, high pain days. Had a dystonic storm on Saturday, which was an unexpected work out. In order to stop the storm, I had to take a high dose of benadryl which kicked my butt. Have been resting and trying to let my body recover.
I haven’t been eating as well as I should and it has resulted in exacerbation of my symptoms. The stress of all that has been going on is also a factor. But I have more control over my diet then the stress. I do what I can to manage the stress levels, but there is only so much I can do in that department. However, I have control over my diet. So, I need to eat better.
Suffering is a universal human experience. Humans suffer whenever they are denied something that they desire. The degree of the suffering is directly correlated to the degree of the desire.
Why is this important?
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