I had my second opinion cardiology appointment. I have been diagnosed with POTS. It was a good appointment with a knowledgeable doctor. I’m glad I got the second opinion. I’m hoping that this new doctor can get me feeling better. We are focusing on diet changes first and if that doesn’t help he will consider medication. I’m glad he wasn’t eager beaver with the drugs. I’m on plenty and not looking to add more. 2 grams of sodium daily along with 4 liters of water is a bit daunting. And the caffeine is out. No real hardship there. Taking the salt as tablets because adding that much to my food is gross. It’s a crazy amount of fluid. I’m going to turn into a fish! I will continue with the compression garments, except he wants me to wear them 24/7. Not sure my skin will tolerate that, but we’ll see. I’m just glad I have a direction to move in. Hoping this will help.
Sunday I passed out and was unconscious on my bathroom floor for an undetermined period of time. My blood pressure was low and my pulse elevated. So off to the ED I went. I never like being the patient, but it’s particularly bad in the ED. The focus there is so narrow (understandably) that those of us with chronic illness often have a hard time in that setting.
But I was pleasantly surprised.Continue reading “Update 102220”