One things about the internet, is that it creates an illusionary world that is easy to believe in. It tells us about all the amazing adventures, great times and tons of friends that other people are having while we are failing to achieve the same. There is a very real risk of comparing ourselves to these illusions and believing that we are some how falling short or failing in life.Continue reading “Friendship Illusions”
There are times,
that we are left to the winds.
we must jump
and have faith;
that we will fly rather then fall.
At the heart of managing any chronic illness is finding balance in our lives. There are never any perfect, risk free solutions to the problems we face. Thus we have to constantly weigh risks vs benefits of treatments and quality vs quantity of life.Continue reading “Struggling to Find Balance”
When diagnosed with a chronic illness or disorder, many complex things happen in your life. There is the moment when you have to decide who you disclose the diagnosis to and who you keep it from. This is a very personal and often complex decision filled with emotional landmines. So, what do you do when faced with denial after the disclosure?Continue reading “Navigating Denial”
1. Matter, as distinct from mind and spirit, is a broad word that applies to anything perceived, or known to be occupying space: solid matter; gaseous matter.www.dictionary.com
2. to be of importance; signify
It is interesting that we use the same word to identify that something has substance and that it has meaning. Inherent in our language is the suggested value that all things that exist have meaning. This single shared meaning, suggestiong that simply existing equates with holding meaning and thus, having value.Continue reading “Matter”
Let me present you with some startling statistics.
Postural Orthostatic Tachycardia Syndrome (POTS) occurs in about ten percent of the population. This disease occurs at the same rate as Diabetes Mellitus (DM).
On average, a patient sees seven doctors before they are diagnosed with POTS. This means they get an incorrect diagnosis seven times before receiving the correct diagnosis. While many patients with DM go undiagnosed for a long period due to mild or no symptoms, they usually only see a single doctor to get the correct diagnosis.Continue reading “Prevelence”
I find myself at a strange place emotionally.
Years ago, my sister, Toadie, suggested that I might have autism. At the time, I completely dismissed her suggestion. Honestly, I didn’t even give the idea any real consideration. I’m not sure why, but at the time, the idea didn’t seem pausable. Perhaps because I was stuck in the mode of thinking about autism in context of childhood, male presentation. Perhaps because I was hung up on the idea that those with autism have some sort of speech delay or other vocal imapirment. Which I don’t have.Continue reading “Update 030921”
I frequently hear people say that you need to “find your purpose” and “pursue your passion” in order to be happy in life. These ideas are fraught with problems.
First, passion is an emotion and like all emotions will wax and wane. You will never feel passionately about anything all the time. Believing that any emotion, let alone strong emotions (like passion) can be sustained over long periods is just unrealistic and will lead to disappointment.Continue reading “The Myth of Purpose”
Rejection Sensivity Dysphoria (RSD) is an evil nagging imp that rides on your shoulder and lies to you about everything. It tells you that everyone around you is judging you poorly. It tells you that you are not good enough. It tells you that you don’t measure up when compared to others. It tells you that you need to be perfect in order to acheieve any kind of success. It tells you that you are impossible to love because you are not worthy of being loved.Continue reading “Stupid Little Imp”