Update 2/7/22

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today. I’m glad that you are here.

I had my follow up appointment regarding the endometriosis. The hormone that I was put on isn’t helping with my pelvic pain. In fact, the pain is only getting worse. So, we’re stopping the hormone because there is no value in taking the medication if it isn’t going to reduce my pain. I have an IUD so I have very little bleeding even without the oral hormone, so I don’t even need it for that.

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The Grey Between

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I’m glad that you are here. Today I want to talk about the way that the human brain likes to put things into boxes.

When you get a diagnosis, doesn’t matter which one, you start to consider yourself and all your symptoms or traits. You try to decide which of those traits are because of this diagnosis and which are because of something else. In the case of getting a mental illness diagnosis, you start to wonder how much of you is really you and how much is your disorder. And when you have more then one diagnoses, like most of us do, we find that there are these weird areas of grey that live between our diagnoses.

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My Diagnosis

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I am glad that you are here.

I have decided that my next series will be about my various diagnoses. I am going to be sharing my personal experiences with these diagnoses rather then discussing what the diagnosis is in all its possibilities. I feel that it is important for those of us who are living with chronic illnesses to share their lived experiences. This has value because many of our illnesses are invisible, rare, hold stigma and are misunderstood. Talking about our lived experiences can help shed light on what it is actually like to live with chronic illness. The internet has given us a platform that we historically have never had before. By using it, we can help change the way that people with chronic illnesses and those with disabilities are being treated both medically and socially.

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Coping Skills: Part Two

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

Coping with Chronic Illness

You can also listen to the pod cast here:

Coping with Chronic Illness

But I am revisiting the topic to talk about it from a more practical perspective. I want to talk about some coping skills or tools that you can use to help get you through the tough times. As I got to working on this, I realized that there was a lot of material here, so I’ve broken it into two parts. This is the promised second post about coping skills.

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Festival of Sleep

Hello my Zebras and Spoonies! Thanks for coming and visiting me today, I’m glad that you are here.

Today is actually a holiday. Admittedly, one that most people have never heard of and one that few people celebrate. Today is the Festival of Sleep Day. It is also National Straw Drinking Day, Weigh-In Day, National Chocolate Covered Cherry Day, and Humiliation Day. There are a lot of strange, little know holidays out there that few people know about or celebrate. I’ve decided that I will be highlighting some of the ones that I think are fun or that highlight important issues. If you’d like to know more about these strange little holidays, you can go to Days of the Year or Holiday Insights. Because the strange fact of the matter is that there is a holiday on every day of the year and on most days, there is actually more then one.

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Recording Doctor Appointments

Hello my Zebras and Spoonies! Thanks for visiting and hanging out with me today, I’m glad that you are here.

Today I want to talk about patients recording their doctor appointments. With about everyone having a smart phone these days, it is pretty easy to take photos, videos and audio recordings of about everything in our lives. Many have started including their doctor appointments in the list of things to record. There is a lot to this topic, but let’s start with the the legal stuff.

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Coping Skills: Part One

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

Continue reading “Coping Skills: Part One”

The Obesity Discussion

Hello my zebras and spoonies, thank you for coming and hanging out with me today. I am glad that you are here.

Today I’m going to be talking about obesity, because this is a complicated and touchy topic. For those of you who don’t know, I’m going to start by talking about a little bit of my own personal history in that I used to be morbidly obese. I have been struggling a lot with my weight and have historically had some good success. I have lost enough weight that while I am still obese, I am no longer in the category of being morbidly obese and this is a huge win for me. But the fight is constant and every day and really difficult. And I don’t need to tell anybody who has tried to lose weight how amazingly difficult of a task that is.

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