What does hope mean to you?

“Hope” is the thing with feathers –

That perches in the soul –

And sings the tune without the words –

And never stops – at all –

And sweetest – in the Gale – is heard –

And sore must be the storm –

That could abash the little Bird

That kept so many warm –

I’ve heard it in the chillest land –

And on the strangest Sea –

Yet – never – in Extremity,

It asked a crumb – of me.

BY EMILY DICKINSON
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Update 011822

Hello my zebras and spoonies! Thanks for coming and visiting me today. I am glad that you’re here.

Well, I skipped on recording yesterday and didn’t do any posting yesterday because I had no spoons. I went and crashed out for like 14 hours and I’m feeling a little bit better today. It’s amazing how much sleep can make a difference for me sometimes. And then other times it’s like I can sleep all I want and I still feel exhausted. Yeah. It’s like playing Russian roulette when I go to sleep. Sometimes I’ll sleep 10 minutes and feel great. Sometimes I sleep 10 hours feel great. Sometimes I sleep those same amounts of times and feel like crap. You just never know.

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Chloride

When you have chronic illness, it isn’t uncommon to have problems with electrolyte imbalances. Because of that, I’ve decided to do a series that talks about what they are, how the body uses them and things that we can do to manage our electrolytes. For the next seven weeks, I will make a post on Wednesday about one of the electrolytes.

Today we are talking about Chloride. While this is one of the electrolytes generally not discussed, it is highly important in our bodies. Chloride is, after sodium, the most abundant electrolyte in serum, with a key role in the regulation of body fluids, electrolyte balance, the preservation of electrical neutrality, acid-base status and it is an essential component for the assessment of many pathological conditions. The normal adult value for chloride is 97-107 mEq/L. 

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Coping Skills: Part Two

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

Coping with Chronic Illness

You can also listen to the pod cast here:

Coping with Chronic Illness

But I am revisiting the topic to talk about it from a more practical perspective. I want to talk about some coping skills or tools that you can use to help get you through the tough times. As I got to working on this, I realized that there was a lot of material here, so I’ve broken it into two parts. This is the promised second post about coping skills.

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Festival of Sleep

Hello my Zebras and Spoonies! Thanks for coming and visiting me today, I’m glad that you are here.

Today is actually a holiday. Admittedly, one that most people have never heard of and one that few people celebrate. Today is the Festival of Sleep Day. It is also National Straw Drinking Day, Weigh-In Day, National Chocolate Covered Cherry Day, and Humiliation Day. There are a lot of strange, little know holidays out there that few people know about or celebrate. I’ve decided that I will be highlighting some of the ones that I think are fun or that highlight important issues. If you’d like to know more about these strange little holidays, you can go to Days of the Year or Holiday Insights. Because the strange fact of the matter is that there is a holiday on every day of the year and on most days, there is actually more then one.

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Recording Doctor Appointments

Hello my Zebras and Spoonies! Thanks for visiting and hanging out with me today, I’m glad that you are here.

Today I want to talk about patients recording their doctor appointments. With about everyone having a smart phone these days, it is pretty easy to take photos, videos and audio recordings of about everything in our lives. Many have started including their doctor appointments in the list of things to record. There is a lot to this topic, but let’s start with the the legal stuff.

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Calcium

When you have chronic illness, it isn’t uncommon to have problems with electrolyte imbalances. Because of that, I’ve decided to do a series that talks about what they are, how the body uses them and things that we can do to manage our electrolytes. For the next few weeks, I will make a post on Wednesday about one of the electrolytes.

Calcium is the most abundant mineral in the human body with 99% of it being within the bones and teeth. It also helps the body maintain neuro conduction. This means that calcium is essential for normal muscle movement and for your heart to function properly. Normal lab values for calcium range from 8.5 to 10.2 mg/dL.

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Potassium

Potassium is a mineral that your body needs to work properly. It is a type of electrolyte. It helps your nerves to function and muscles to contract. It helps your heartbeat stay regular. It also helps move nutrients into cells and waste products out of cells. A diet rich in potassium helps to offset some of sodium’s harmful effects on blood pressure. A normal blood result for potassium is 3.5-5.

So, it’s pretty important to make sure that you are getting enough.

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