Hello my Zebras and Spoonies! Thanks for stopping by and visiting with me today!
Like many of us with chronic illness, I have challenges when trying to eat. I have to eat a special diet in order to keep my stomach happy and to avoid having flares. I eat a low glycemic index, high sodium, high fluid, pescatarian and low histamine diet. Which is to say: I eat within a really narrow range of “safe foods.” Does this sounds familiar? Maybe not the same diet, but the same struggle?
Continue reading “The Challenge of Eating”
Been a busy couple weeks with doctor appointments. I have been lucky and have been getting really good doctors. That makes things so much easier!
I saw the cardiologist and am now formally diagnosed with POTS. Not changing anything with my management at this point, but having the diagnosis helps. Good to know for sure what I’m dealing with and helps keep all my providers in the know.
Continue reading “120820”
The last few days have been difficult, high pain days. Had a dystonic storm on Saturday, which was an unexpected work out. In order to stop the storm, I had to take a high dose of benadryl which kicked my butt. Have been resting and trying to let my body recover.
I haven’t been eating as well as I should and it has resulted in exacerbation of my symptoms. The stress of all that has been going on is also a factor. But I have more control over my diet then the stress. I do what I can to manage the stress levels, but there is only so much I can do in that department. However, I have control over my diet. So, I need to eat better.
Nutrition cannot cure Elhers Danlos Syndrome, but the right diet and supplements can greatly improve symptoms. This article reviews the nutritional supplement recommendations for anyone with EDS-C or EDS-H. Unfortunately, the diet recommendations are not as clear cut because of all the comorbidities that come with EDS.
A novel therapeutic strategy for Ehlers–Danlos syndrome based on nutritional supplements