Getting Better Sleep

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. Not getting enough sleep is a common problem for those of use with chronic illness, so that’s what I’m going to be talking about today. We run around sleep deprived and stressed out. This takes a heavy toll on our bodies and degrades our health. The most important thing that you can do to improve your health is to improve your sleep.

The first thing to mention is the paradox that the more tired you are, the less likely you are to sleep well. This is why it is essential that you listen to your body and sleep when you’re tired. If you can’t sleep at that time, consider taking a nap to boost your energy. If you stay awake through this call for sleep, you are likely to hit that “second wind” which makes it much more difficult to fall asleep later.

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Napping

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. Today I’m going to talk about one of my favorite things: naps! I personally believe that naps are given a bad rap and are usually under rated. I personally wish that I could go back and claim all the naps I refused as a child…

Afternoon nap-time typically coincides with a brief lag in the body’s internal alerting signal. This signal, which increases throughout the day to offset the body’s increasing drive to sleep, wanes slightly in mid-afternoon, giving sleep drive a slight edge. Napping also typically happens during the warmest period of the day and generally follows a large mid-day meal, which explains why afternoon sleepiness is so often associated with warm afternoon sun and heavy lunches.

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My EDS

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. Today I’m going to be talking about my experience with Elhers Danlos Syndrome Hypermobile type as part of the “My Diagnosis” series. Now that I’ve covered all my mental health topics, I feel like the physical topic that I should start with is hEDS. That’s because this is the big one for me. It really can be argued that all my other physical problems come back to this one problem.

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Update 012322

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you’re here.

Just wanted to check in today and talk about how things have been going with my life. I am recovering from an upper respiratory infection and am in the middle of an interstitial cystitis (IC) flare. So, I have been feeling less than awesome as of late with the expectation that my bladder will continue to feel angry for a while yet. Because I have not been feeling well, my sleep has been more unstable which just makes things more difficult for me. This has also greatly effected my diet which also has a major impact on how I am feeling.

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The Wall

One of the things about ADHD that many people don’t know about is “the wall.” Well, that’s what I call it anyway. I go on screech for endless days and seem full of an eternal amount of mental energy. Until I’m not. And it comes sudden. I just hit this wall and then all I want to do is curl up in a hole and hide from the world. This cloud of apathy swallows me up and I find it a struggle to get just the every day things done. A deep, aching brain fatigue washes over me. For some reason, the world doesn’t recognize “the wall” as a valid reason for an impromptu vacation from life for a few days so I have to continue to slog through and it completely sucks.

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Update 090121

I have been having a rough time over the past week. The heat has been making my POTS flare up. Still had to work a crazy schedule even though I was feeling like crap and was super tired. Work has been taking all my spoons. On my days off I’ve been doing the marathon sleep thing in hopes of generating enough spoons for the next round of work shifts. I’m not sure if the nausea or the fatigue has been the bigger challenge this week. Been a struggle to get anything down and then keeping it down has been a gamble. Fatigue is a challenge because there isn’t any way to get any more energy. There just isn’t any go and that’s all there is to that. So, yeah. It’s been a rough week.

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