Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you’re here.
Just wanted to check in today and talk about how things have been going with my life. I am recovering from an upper respiratory infection and am in the middle of an interstitial cystitis (IC) flare. So, I have been feeling less than awesome as of late with the expectation that my bladder will continue to feel angry for a while yet. Because I have not been feeling well, my sleep has been more unstable which just makes things more difficult for me. This has also greatly effected my diet which also has a major impact on how I am feeling.
Continue reading “Update 012322”
Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.
Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:
Continue reading “Coping Skills: Part One”
Hello my zebras and spoonies! Thanks for coming and visiting with me today.
So, last week was a long one. Sunday was Halloween, you know on the 31st and I had a fantastic holiday. Halloween is my favorite holiday of the year and I was low on spoons and I decided to push it anyway and I did the whole thing. Got into costume and make up and passed out candy for several hours. Then we did a dinner and some scary movies after passing out candy. That came at a price; because that’s the thing about having a chronic illness. You don’t get to just do the thing. You usually do the thing and then you get to spend some undetermined amount of time paying the price for doing the thing. For me, it’s been most of a week, and I’m still kind of gimping on into recovery but at least I’m mostly functional at this point. By overextending myself, managed to send myself into a mast cell flare. On the upside it didn’t lead to any kind of anaphylactic reaction. Just kind of all around: “symptoms that suck.” So at least there’s that.
Continue reading “Update 110821”
One of the things about ADHD that many people don’t know about is “the wall.” Well, that’s what I call it anyway. I go on screech for endless days and seem full of an eternal amount of mental energy. Until I’m not. And it comes sudden. I just hit this wall and then all I want to do is curl up in a hole and hide from the world. This cloud of apathy swallows me up and I find it a struggle to get just the every day things done. A deep, aching brain fatigue washes over me. For some reason, the world doesn’t recognize “the wall” as a valid reason for an impromptu vacation from life for a few days so I have to continue to slog through and it completely sucks.
Continue reading “The Wall”
I have been having a rough time over the past week. The heat has been making my POTS flare up. Still had to work a crazy schedule even though I was feeling like crap and was super tired. Work has been taking all my spoons. On my days off I’ve been doing the marathon sleep thing in hopes of generating enough spoons for the next round of work shifts. I’m not sure if the nausea or the fatigue has been the bigger challenge this week. Been a struggle to get anything down and then keeping it down has been a gamble. Fatigue is a challenge because there isn’t any way to get any more energy. There just isn’t any go and that’s all there is to that. So, yeah. It’s been a rough week.
Continue reading “Update 090121”
Hello Zebras and Spoonies!
Thanks for stopping by. How has everyone been doing? I hope that life and the universe has been treating you well.
I have been doing the travel nursing job for three months now and thus far I am loving the work. But I won’t lie; it’s been tough. I’ve been working as a Med Surg nurse, doing direct patient care and it is a very physically demanding job. The most difficult part is the amount of time required standing. The twelve hour shifts can get hard. I’m doing my best to find a balance with my body, but I know that the reality is that I will not be able to do this work for much longer. The plan is to work for a few years as a travel nurse and get all our debt paid off. Then we will have more flexibility for choosing jobs and locations when my body has more inevitable changes.
Continue reading “061121”