Hello Dazzle! Thanks for coming and hanging out with me today, I’m glad that you are here. Today I just wanted to talk about the catch 22 of chronic illness. What’s the catch 22? How difficult it can be to judge how much or which activities are going to be alright and which ones are going to cause problems. One thing that almost every provider and most spoonies talk about is how important it is to manage and prevent your symptoms. What isn’t talked about enough is that this isn’t a simple equation that’s all worked out for us that will determine how to behave in order to achieve the best outcomes.Continue reading “The Catch 22 of Chronic Illness”
This is such a frustrating time to have a chronic illness. Everything is being put on hold. It is so frustrating to have things postponed after waiting months to get them in the first place and then not knowing when they’ll happen later. All the worrying about what can go wrong can wreck you. While I think we all understand why these measures are important and have to be put into place, it is still hard not to feel like we are being in some ways disregarded.
Please, don’t let these delays in care hurt your self-esteem. Please, keep track of everything being cancelled so that you can follow up with everyone later when the COVID-19 storm settles. The medical system will be disorganized once we are past this and it is likely that people will be over looked. So, keep track for yourself. List them in order of your personal priority so that you will know which things to chase down first.