My EDS

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. Today I’m going to be talking about my experience with Elhers Danlos Syndrome Hypermobile type as part of the “My Diagnosis” series. Now that I’ve covered all my mental health topics, I feel like the physical topic that I should start with is hEDS. That’s because this is the big one for me. It really can be argued that all my other physical problems come back to this one problem.

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Let’s Talk About Bras!

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. Today, I’m going to be talking about bras. If you aren’t among the bra wearing folk, feel free to take a stroll or you can pull up a chair and get a better idea what goes on with other folks’ clothes. The thing is that bras are notorious for causing problems and those of us with chronic illness are often more prone to having those issues. So, let’s talk about some of the problems that bras cause and what you can do about it.

WARNING: This post is going to be talking about undergarments, breasts and the ways those things can make us feel.

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Update 2/7/22

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today. I’m glad that you are here.

I had my follow up appointment regarding the endometriosis. The hormone that I was put on isn’t helping with my pelvic pain. In fact, the pain is only getting worse. So, we’re stopping the hormone because there is no value in taking the medication if it isn’t going to reduce my pain. I have an IUD so I have very little bleeding even without the oral hormone, so I don’t even need it for that.

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My ADHD: Rejection Sensitivity Dysphoria

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you are here. Today is my second installment for the “My Diagnosis” series and the second part that is talking about My ADHD.

I want to start by talking about the fact that Rejection Sensitivity Dysphoria (RSD) is not a symptom listed in the DSM5. This has caused many people to tell me that it isn’t really a part of ADHD. The thing to keep in mind is the actual role and purpose of the DSM5. It is a diagnostic manual. This means that the purpose of the book is not to cover each diagnosis in it’s fullness. The purpose of the book is to cover the criteria that are needed to be diagnosed with the diagnosis. This means that every diagnosis in the DSM5 is not represented in it’s full capacity. It is only presented in the manner that will allow a provider to know if someone has met (or not met) the diagnostic criteria for a disorder. There are many aspects to all of these diagnoses that are not talked about in the DSM5 because they are not diagnostic features of the diagnosis.

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Update 012322

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you’re here.

Just wanted to check in today and talk about how things have been going with my life. I am recovering from an upper respiratory infection and am in the middle of an interstitial cystitis (IC) flare. So, I have been feeling less than awesome as of late with the expectation that my bladder will continue to feel angry for a while yet. Because I have not been feeling well, my sleep has been more unstable which just makes things more difficult for me. This has also greatly effected my diet which also has a major impact on how I am feeling.

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Update 112321

Hello my zebras and spoonies! thank you for coming and hanging out with me. I’m glad that you’re here.

Today I’m just going to give an update of life, the universe and everything that is me. Some backstory is that I have endometriosis and with that I’ve had a lot of pain, which has been progressively getting worse over the last five to six years. I have a Mirena IUD that I’ve been using to control the bleeding and pain. It’s not really doing the job that I need it to do anymore. It has been controlling the bleeding, but not the pain.

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