
Spoons…

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today, I’m glad that you’re here! Today I am going to be talking about spoon theory and some of the ways that it has moved beyond spoons. Spoon Theory was developed in 2003 by writer Christine Miserandino to explain how having lupus impacts her ability to perform daily tasks. This theory has resonated with the chronic illness community and has grown into a lot more then what Christine first presented. I have heard many chronic illness people talking about other silverware beyond spoons. I personally love the entire silverware metaphor because I think it is fun, silly and beautifully captures the chronic illness experience in a way that can be more easily expressed to the able bodied. So, let’s look at our silverware!
Continue reading “Consider the Silverware”Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you’re here.
Just wanted to check in today and talk about how things have been going with my life. I am recovering from an upper respiratory infection and am in the middle of an interstitial cystitis (IC) flare. So, I have been feeling less than awesome as of late with the expectation that my bladder will continue to feel angry for a while yet. Because I have not been feeling well, my sleep has been more unstable which just makes things more difficult for me. This has also greatly effected my diet which also has a major impact on how I am feeling.
Continue reading “Update 012322”Hello my zebras and spoonies! Thanks for coming and visiting me today. I am glad that you’re here.
Well, I skipped on recording yesterday and didn’t do any posting yesterday because I had no spoons. I went and crashed out for like 14 hours and I’m feeling a little bit better today. It’s amazing how much sleep can make a difference for me sometimes. And then other times it’s like I can sleep all I want and I still feel exhausted. Yeah. It’s like playing Russian roulette when I go to sleep. Sometimes I’ll sleep 10 minutes and feel great. Sometimes I sleep 10 hours feel great. Sometimes I sleep those same amounts of times and feel like crap. You just never know.
Continue reading “Update 011822”Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.
Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:
You can also listen to the pod cast here:
But I am revisiting the topic to talk about it from a more practical perspective. I want to talk about some coping skills or tools that you can use to help get you through the tough times. As I got to working on this, I realized that there was a lot of material here, so I’ve broken it into two parts. This is the promised second post about coping skills.
Continue reading “Coping Skills: Part Two”Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today. I’m glad that you’re here.
I’m sure that you’ve noticed that the past week there has been an lack of posting on all my online locations. I simply have not had the spoons. I’ve decided to write an update today to explain the reason for the lacking of spoons and then I’m going to try to get some things into the cue for my various sites so that there will be fewer crickets.
Continue reading “Update 121521”Hello my Zebras and Spoonies. Thank you for coming over and hanging out with me for a little while. I am really glad that you are here.
Something that we don’t tend to think of as a stressor in our lives is our life transitions. These are the times in our lives that we are having a role shift or a major change in the way that we are living. Some examples of these are marriage, the birth of a child, retiring, the death of a significant person in our life, a disabling accident, or having a chronic illness that develops to the point of disabling us, getting a new job, traveling to a new location, a new place of living, getting a new house or a new apartment, getting divorced, graduating from school (high school or college), empty nest syndrome, and many others. All of these are times in our lives where we change the roles that we’re playing. With that comes a shift in our identity and how we see ourselves.
Continue reading “Life Transitions”