My Diagnosis

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I am glad that you are here.

I have decided that my next series will be about my various diagnoses. I am going to be sharing my personal experiences with these diagnoses rather then discussing what the diagnosis is in all its possibilities. I feel that it is important for those of us who are living with chronic illnesses to share their lived experiences. This has value because many of our illnesses are invisible, rare, hold stigma and are misunderstood. Talking about our lived experiences can help shed light on what it is actually like to live with chronic illness. The internet has given us a platform that we historically have never had before. By using it, we can help change the way that people with chronic illnesses and those with disabilities are being treated both medically and socially.

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Coping Skills: Part One

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

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Life Transitions

Hello my Zebras and Spoonies. Thank you for coming over and hanging out with me for a little while. I am really glad that you are here.

Something that we don’t tend to think of as a stressor in our lives is our life transitions. These are the times in our lives that we are having a role shift or a major change in the way that we are living. Some examples of these are marriage, the birth of a child, retiring, the death of a significant person in our life, a disabling accident, or having a chronic illness that develops to the point of disabling us, getting a new job, traveling to a new location, a new place of living, getting a new house or a new apartment, getting divorced, graduating from school (high school or college), empty nest syndrome, and many others. All of these are times in our lives where we change the roles that we’re playing. With that comes a shift in our identity and how we see ourselves.

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House Work with Chronic Illness

When you have chronic illness, you often find that you don’t have as much energy as you’d like to have and you have to start making choices about how and when you are going to use that energy. One challenge that I frequently hear people with chronic illness talking about is having enough energy to get their house work done. There is no perfect equation that will make this achievable for everyone, but there are things that you can do to make reaching this goal more possible.

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