The Catch 22 of Chronic Illness

Hello Dazzle! Thanks for coming and hanging out with me today, I’m glad that you are here. Today I just wanted to talk about the catch 22 of chronic illness. What’s the catch 22? How difficult it can be to judge how much or which activities are going to be alright and which ones are going to cause problems. One thing that almost every provider and most spoonies talk about is how important it is to manage and prevent your symptoms. What isn’t talked about enough is that this isn’t a simple equation that’s all worked out for us that will determine how to behave in order to achieve the best outcomes.

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Medical Journaling

How do you make sure that the different pieces in your life all stay stable and well managed? The answer is that there’s no magical answer for everyone in doing this and that, unfortunately, it’s just a lot of trial and error. No matter how good of a regimen you have, no matter how good of a system, and no matter how good a support structure you have, there are always going to be flares and there’s always going to be difficult days that your symptoms are more pronounced than on other days. I think the key to focus on isn’t whether or not you’re having flares, but whether or not those flares are at a manageable level, and whether or not they’re staying at the same amount of frequencies.

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