Keep Track!

This is such a frustrating time to have a chronic illness. Everything is being put on hold. It is so frustrating to have things postponed after waiting months to get them in the first place and then not knowing when they’ll happen later. All the worrying about what can go wrong can wreck you. While I think we all understand why these measures are important and have to be put into place, it is still hard not to feel like we are being in some ways disregarded.  

Please, don’t let these delays in care hurt your self-esteem. Please, keep track of everything being cancelled so that you can follow up with everyone later when the COVID-19 storm settles. The medical system will be disorganized once we are past this and it is likely that people will be over looked. So, keep track for yourself. List them in order of your personal priority so that you will know which things to chase down first. 

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