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Update 040120
This experience has made me realize how important our coping skills are right now. Coping skills are the things we do to manage our emotions when changing the situation is not appropriate or possible. Read ⇢
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Update 032020
All non-essential appointments on hold. This is such a crappy thing for those with chronic illnesses. While our needs might not be urgent at the moment it is so easy for everything to pile up and create a land slide. It is essential to stay in prevention mode. Read ⇢
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EXISTENTIALISM SAVES US
Most people who struggle with chronic illness have also had to face an existential crisis. Most don’t call it this or realise that there is a name for it, but most of us share this experience as we move through our journey of grief. We have to face the world… Read ⇢
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You Don’t Know About Me
One thing that’s frustrating about the medical system is how much I have to let others decide things when they know nothing about my condition. Doctors who’ve never heard of EDS get to tell me what’s best for my body and even medical insurance gets to weigh in on it.… Read ⇢
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UMIRIO Shower Shut Off Valve
Another thing that’s helpful when taking a shower while sitting. Once you’re sitting in the shower, it can be difficult to reach the controls. This little thing makes it so that you can control the water right at the shower head. This makes things so much easier Read ⇢
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BathBeyond Shower Head Holder
Once you get a shower chair, it makes it hard to reach the shower head and controls for the shower. Getting this was a huge help. You can put it where you can easily reach it and where it will run on you while you are sitting. The neck doesn’t… Read ⇢
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Ez2care Shower Bench
This shower chair is excellent. It is super light weight so it is easy for me to move around. It’s legs adjust enough to accommodate this short person so I can sit on it with my feet flat on the floor. It easily comes apart which makes it portable so… Read ⇢
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Sodium Chloride Tablets 1 Gm
Eating a high sodium diet is a challenge. But I need to do it to keep my blood pressure up and to prevent syncope. I use sugar free electrolyte drinks and a sodium chloride supplement to help me get the sodium that I need. Read ⇢
Meet the blog host, Zebra Pig.
A neurodivergent, chronic illness gaming nerd and nurse. Talking about all things in the medical and chronic illness world. Telling my story and giving my perspective.
