Update 012322

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you’re here.

Just wanted to check in today and talk about how things have been going with my life. I am recovering from an upper respiratory infection and am in the middle of an interstitial cystitis (IC) flare. So, I have been feeling less than awesome as of late with the expectation that my bladder will continue to feel angry for a while yet. Because I have not been feeling well, my sleep has been more unstable which just makes things more difficult for me. This has also greatly effected my diet which also has a major impact on how I am feeling.

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Update 110821

Hello my zebras and spoonies! Thanks for coming and visiting with me today.

So, last week was a long one. Sunday was Halloween, you know on the 31st and I had a fantastic holiday. Halloween is my favorite holiday of the year and I was low on spoons and I decided to push it anyway and I did the whole thing. Got into costume and make up and passed out candy for several hours. Then we did a dinner and some scary movies after passing out candy. That came at a price; because that’s the thing about having a chronic illness. You don’t get to just do the thing. You usually do the thing and then you get to spend some undetermined amount of time paying the price for doing the thing. For me, it’s been most of a week, and I’m still kind of gimping on into recovery but at least I’m mostly functional at this point. By overextending myself, managed to send myself into a mast cell flare. On the upside it didn’t lead to any kind of anaphylactic reaction. Just kind of all around: “symptoms that suck.” So at least there’s that.

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