Feel Better?

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. Today is going to be a bit of a ranting day. It’s on the topic of mental health and the strange platitudes that people without mental illness give us. There are many that make sense to me and I understand why they say them, but there are many that have never made sense to me.

Alright, so I was reading around on the blogs that I follow and I came across something that really resonated with me on BlahPolar Diaries. So, here’s what was said:

And my shrink said, “don’t you feel better now that you know it wasn’t you, it was the disorder?” I don’t. Not even slightly.

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Getting Control

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. So, you’ve been diagnosed with a chronic illness. Now what? There are things that you can do to help find balance in your life (regardless of the diagnosis or even if you don’t have one).

While this list is going to be simple, it is important to remember that they are things that are hard to implement. Life style changes are hard and take time to master. You are more likely to be successful if you work on one area of your life at a time. Shoring up even one area will increase your well being, even if there are other areas that still need work. Remember to be patient with your self and to keep in mind that change takes time.

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My ADHD: Rejection Sensitivity Dysphoria

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you are here. Today is my second installment for the “My Diagnosis” series and the second part that is talking about My ADHD.

I want to start by talking about the fact that Rejection Sensitivity Dysphoria (RSD) is not a symptom listed in the DSM5. This has caused many people to tell me that it isn’t really a part of ADHD. The thing to keep in mind is the actual role and purpose of the DSM5. It is a diagnostic manual. This means that the purpose of the book is not to cover each diagnosis in it’s fullness. The purpose of the book is to cover the criteria that are needed to be diagnosed with the diagnosis. This means that every diagnosis in the DSM5 is not represented in it’s full capacity. It is only presented in the manner that will allow a provider to know if someone has met (or not met) the diagnostic criteria for a disorder. There are many aspects to all of these diagnoses that are not talked about in the DSM5 because they are not diagnostic features of the diagnosis.

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My Diagnosis

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I am glad that you are here.

I have decided that my next series will be about my various diagnoses. I am going to be sharing my personal experiences with these diagnoses rather then discussing what the diagnosis is in all its possibilities. I feel that it is important for those of us who are living with chronic illnesses to share their lived experiences. This has value because many of our illnesses are invisible, rare, hold stigma and are misunderstood. Talking about our lived experiences can help shed light on what it is actually like to live with chronic illness. The internet has given us a platform that we historically have never had before. By using it, we can help change the way that people with chronic illnesses and those with disabilities are being treated both medically and socially.

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Coping Skills: Part One

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

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Update 110821

Hello my zebras and spoonies! Thanks for coming and visiting with me today.

So, last week was a long one. Sunday was Halloween, you know on the 31st and I had a fantastic holiday. Halloween is my favorite holiday of the year and I was low on spoons and I decided to push it anyway and I did the whole thing. Got into costume and make up and passed out candy for several hours. Then we did a dinner and some scary movies after passing out candy. That came at a price; because that’s the thing about having a chronic illness. You don’t get to just do the thing. You usually do the thing and then you get to spend some undetermined amount of time paying the price for doing the thing. For me, it’s been most of a week, and I’m still kind of gimping on into recovery but at least I’m mostly functional at this point. By overextending myself, managed to send myself into a mast cell flare. On the upside it didn’t lead to any kind of anaphylactic reaction. Just kind of all around: “symptoms that suck.” So at least there’s that.

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042621-1446

Broken, scattered pieces

Laying strewn across the floor

Something missing and lost forever

I cannot no longer see my future

Or the person I was becoming

Now, I’m undone and something else

I am this diagnosis

This label that owns me

Stealing everything I imagined I’d become

And rewriting me without my consent

As my body cracks and crumbles

My hope turns to dust

Leaving me here to stare at my mortality in the mirror