Getting Control

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. So, you’ve been diagnosed with a chronic illness. Now what? There are things that you can do to help find balance in your life (regardless of the diagnosis or even if you don’t have one).

While this list is going to be simple, it is important to remember that they are things that are hard to implement. Life style changes are hard and take time to master. You are more likely to be successful if you work on one area of your life at a time. Shoring up even one area will increase your well being, even if there are other areas that still need work. Remember to be patient with your self and to keep in mind that change takes time.

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Medical Autonomy

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you are here. Today I am going to be talking about Medical Autonomy and some of the ethical complexities that come with it.

Expressing respect for patients’ autonomy means acknowledging that patients who have decision-making capacity have the right to make decisions regarding their care, even when their decisions contradict their clinicians’ recommendations.

AMA Journal of Ethics
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Salt and Water for POTS

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I am glad that you are here!

Today I am going to be talking about how to manage your fluid and sodium intake if you have a POTS diagnosis. This is something that is frequently asked about in the support groups that I am in, so I felt that it was important to tackle. And I only wanted to write it out once, because I’m lazy like that! I mean, come on, it is easier to share a post rather then rewriting it out every time, right?

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Explanations and Excuses

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today. I’m glad that you are here. Today I want to talk about Explanations and Excuses. This is a frequent topic of conversation in chronic illness forums. Doesn’t matter if it is ADHD or GP, having a chronic illness leads to this strange debate of Explanations vs Excuses. Are they different? If so, how? Is it ever reasonable to use your illness as an excuse? Is it ableism to accuse someone of using their illness as an excuse? A lot of questions come up around this topic. So, let’s get into it!

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The Grey Between

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I’m glad that you are here. Today I want to talk about the way that the human brain likes to put things into boxes.

When you get a diagnosis, doesn’t matter which one, you start to consider yourself and all your symptoms or traits. You try to decide which of those traits are because of this diagnosis and which are because of something else. In the case of getting a mental illness diagnosis, you start to wonder how much of you is really you and how much is your disorder. And when you have more then one diagnoses, like most of us do, we find that there are these weird areas of grey that live between our diagnoses.

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Update 012322

Hello my Zebras and Spoonies! Thanks for coming and visiting with me today. I’m glad that you’re here.

Just wanted to check in today and talk about how things have been going with my life. I am recovering from an upper respiratory infection and am in the middle of an interstitial cystitis (IC) flare. So, I have been feeling less than awesome as of late with the expectation that my bladder will continue to feel angry for a while yet. Because I have not been feeling well, my sleep has been more unstable which just makes things more difficult for me. This has also greatly effected my diet which also has a major impact on how I am feeling.

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Coping Skills: Part Two

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

Coping with Chronic Illness

You can also listen to the pod cast here:

Coping with Chronic Illness

But I am revisiting the topic to talk about it from a more practical perspective. I want to talk about some coping skills or tools that you can use to help get you through the tough times. As I got to working on this, I realized that there was a lot of material here, so I’ve broken it into two parts. This is the promised second post about coping skills.

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