Hello, my zebras in spoonies thanks for coming. I’m glad that you’re here. So I’ve been talking about boundaries a lot over my last couple posts and this is also going to be about boundaries. Specifically, I want to talk about medical boundaries, this comes up a lot for those of us who have chronic illness.Continue reading “Medical Boundaries”
Hello, my zebras and spoonies! Thank you for coming in and hanging out with me today, I am glad you are here.
This week for me has been a bit of an adventure. So I finished my previous nursing contract and I have started at my next nursing contract. And well, stuff always comes up with change.Continue reading “092521”
Hello May zebras and spoonies. Thank you for coming in and visiting and hanging out with me today. I’m glad that your hare. Yeah.
All right, so today I’m going to talk about ADHD again, still, some more. One of the things that people often talk about is ADHD is a superpower. Yeah, I don’t buy into that. I personally don’t feel like my ADHD is superpower. A lot of my ADHD stuff makes me a hot mess. I mean, there are days that I sit here and I think to myself, “Am I really an adult?” because I don’t feel like I’m doing these things right. Let’s just be honest having difficulty paying attention and being impulsive and having dysregulation of your emotions is hard and it can be messy. It can make life complicated, and it just can make everything else in your life so much harder.Continue reading “Is ADHD a Super Power?”
I have been having a rough time over the past week. The heat has been making my POTS flare up. Still had to work a crazy schedule even though I was feeling like crap and was super tired. Work has been taking all my spoons. On my days off I’ve been doing the marathon sleep thing in hopes of generating enough spoons for the next round of work shifts. I’m not sure if the nausea or the fatigue has been the bigger challenge this week. Been a struggle to get anything down and then keeping it down has been a gamble. Fatigue is a challenge because there isn’t any way to get any more energy. There just isn’t any go and that’s all there is to that. So, yeah. It’s been a rough week.Continue reading “Update 090121”
A Brief Update
Hello my zebras and spoonies! Thanks for coming and visiting me. As always, I am glad that you’ve stopped by and you’re hanging out with me for a little while.Continue reading “080121”
When you have chronic illness, you often find that you don’t have as much energy as you’d like to have and you have to start making choices about how and when you are going to use that energy. One challenge that I frequently hear people with chronic illness talking about is having enough energy to get their house work done. There is no perfect equation that will make this achievable for everyone, but there are things that you can do to make reaching this goal more possible.Continue reading “House Work with Chronic Illness”
“Maybe the devil is just a man like me. Maybe he’s many men; all men maybe.”
Galilee, by Clive Barker
“Sometimes [things will] seem, by contrast, inconsequential, and you’ll wonder what business they have in [our lives]…Think of these fragments as the shavings off a carpenter’s floor, swept together after some great work has been made. The master piece has been taken from the workshop, but what might we learn from a study of some particular curl of wood about the moment of creation? How here the carpenter hesitated, or there moved to complete a form with unerring certainty? Are these shavings then, that seem at first glance redundant, not also part of the great work, being that which has been removed to reveal it?”Continue reading “Of No Consequence”
At the heart of managing any chronic illness is finding balance in our lives. There are never any perfect, risk free solutions to the problems we face. Thus we have to constantly weigh risks vs benefits of treatments and quality vs quantity of life.Continue reading “Struggling to Find Balance”
Sometimes, keeping things balanced is just not possible and you have to choose between which crappy symptoms you want to have. That’s where I’m at today. Sadness.
The other day, I was experiencing an electrolyte deficiency that lead to me passing out. Clearly, this isn’t a functional or safe state of being and needs to be addressed. So, I loaded up with extra sodium and potassium which got me feeling better.
Until now. Because now I feel awful. The extra potassium has made my interstitial cystitis flare so it feels like there are knives in my bladder. I took some pyridium which helps a little. Now I just have to ride it out.