What does hope mean to you?

“Hope” is the thing with feathers –

That perches in the soul –

And sings the tune without the words –

And never stops – at all –

And sweetest – in the Gale – is heard –

And sore must be the storm –

That could abash the little Bird

That kept so many warm –

I’ve heard it in the chillest land –

And on the strangest Sea –

Yet – never – in Extremity,

It asked a crumb – of me.

BY EMILY DICKINSON
Continue reading “What does hope mean to you?”

House Plant Appreciation Day!

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today, I’m glad that you’re here.

Happy House Plant Appreciation Day! If you have house plants, today is a great day to be thoughtful about why you have them and the benefits that having them offers you. Research has demonstrated that we are relaxed by the presence of house plants. So, go thank your plant for helping to reduce your stress levels! Go on!

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Coping Skills: Part Two

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

Coping with Chronic Illness

You can also listen to the pod cast here:

Coping with Chronic Illness

But I am revisiting the topic to talk about it from a more practical perspective. I want to talk about some coping skills or tools that you can use to help get you through the tough times. As I got to working on this, I realized that there was a lot of material here, so I’ve broken it into two parts. This is the promised second post about coping skills.

Continue reading “Coping Skills: Part Two”

Recording Doctor Appointments

Hello my Zebras and Spoonies! Thanks for visiting and hanging out with me today, I’m glad that you are here.

Today I want to talk about patients recording their doctor appointments. With about everyone having a smart phone these days, it is pretty easy to take photos, videos and audio recordings of about everything in our lives. Many have started including their doctor appointments in the list of things to record. There is a lot to this topic, but let’s start with the the legal stuff.

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Parenting the Neurodivergent

Hello, may zebras and spoonies! Thanks for coming in visiting with me today. I’m glad you are here.

Today I’m gonna be talking about ADHD. Big surprise. I know, right? Because when do I ever talk about that?

One of the things that I see parents of children with ADHD frequently ask in the support groups is what they can do to be better parents for children who have ADHD. And I’ll be honest, that in the support groups thus far, I have never answered this question. I’ve never felt like I had a good answer to this question. And I’ve spent a lot of time trying to think about what my parents could have done differently; could have done better to have given me a better start in life. And instead, I shifted it and started thinking about what it was in my childhood that marked me the most and gave me the most struggles as an adult. So I’m going to start my discussion there.

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Update 121521

Hello my Zebras and Spoonies! Thanks for coming and hanging out with me today. I’m glad that you’re here.

I’m sure that you’ve noticed that the past week there has been an lack of posting on all my online locations. I simply have not had the spoons. I’ve decided to write an update today to explain the reason for the lacking of spoons and then I’m going to try to get some things into the cue for my various sites so that there will be fewer crickets.

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Coping Skills: Part One

Hello my Zebras and Spoonies! Thank you for coming and hanging out with me today. I am glad that you are here.

Today I want to revisit the topic of how I cope with my chronic illness. I made a previous post about this that focused on the philosophy that I use when thinking about my chronic illness that allows me to better manage the challenges I face. You can read that here:

Continue reading “Coping Skills: Part One”

Update 112321

Hello my zebras and spoonies! thank you for coming and hanging out with me. I’m glad that you’re here.

Today I’m just going to give an update of life, the universe and everything that is me. Some backstory is that I have endometriosis and with that I’ve had a lot of pain, which has been progressively getting worse over the last five to six years. I have a Mirena IUD that I’ve been using to control the bleeding and pain. It’s not really doing the job that I need it to do anymore. It has been controlling the bleeding, but not the pain.

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110921-0602

I am not the person you see
as I am living here behind my mask.
You have taught me
that be who I am isn’t safe.
You taught me this with your words,
with the way you’ve shunned me.
You taught me this when you laughed
and made fun of me for being different.
The teacher lied to me,
when she said that words could never hurt me.
Sticks and stones break my bones
and the words cut something deeper.
When you told me, I wasn’t good enough, I believed you.
When you told me, I was lazy, I believed you.
These words you gave me,
became part of who I am.
What is said, is done.
You can never take them back.
And now I live here, behind my mask.